We have organized this list by the criteria used by each organization, as determined by information within their website. While some organizations may not specifically state which criteria they use, most give information on what primer to use or how to get a diagnosis. We are categorizing them by what diagnosis or primer is used. For those that aren't clear they are in the "Undetermined" category.
CCC Organizations Canadian Consensus Criteria (labeled ME/CFS) precursor to ICC.
Bridges & Pathways "Bridges & Pathways Institute Inc. is an Australian charity established focusing on solutions to improve services for the one million Australians affected by ME/CFS and Fibromyalgia pain syndrome." Board Members: Catharine Powell, Debra Davis, Jennifer Faulkner, Kathy Riding, Margaret Watt, Sandra Ash Registered Charity
ME/CFS Australia Ltd "ME/CFS Australia is a registered charity with a key goal of influencing national health care decision makers to improve the care & treatment of people with ME/CFS. One of our key goals is to influence national health care decision makers to improve the care and treatment of people with ME/CFS." Board of Directors: Geoffrey Hallmann, Troy Johnson, Penelope McMillan, Robert Longworth, Simonne Harrison, Lyn Wilson, Cathie Powell Registered Charity
Emerge Australia FB Page "Emerge Australia is a national organisation providing information, support and advocacy for people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)." Committee of Management: Martin Wilkinson, Mark Clisby, Andrew Bretherton, Russell Smith, Rebecca Davey, Nola Miles, Caitlin Phillips-Peddlesden Staff: Dr Heidi Nicholl, Simone Eyssens, Jen Temm, Rebecca Bramley, Danielle Martin, Amy Gibson, Kate Mills, Laura Allen, Marie Cameron, Wendy Foster, Jessica Kauhausen, John Jeffries Registered Charity
ME/CFS South Australia (SA) Inc. "We provide peer support, education and advocacy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, and related illnesses. ME/CFS SA does not receive any government funding but relies on memberships, donations, fundraising and volunteers to continue its work in the community." Board of Directors: Penelope McMillan, Carla Talbot, Erik Rasmussen Committee Members: Bradley Langshaw, Bronwyn Caldwell, Trevor Ryan Registered Charity
ME Advocacy Network Australia (Private FB Group) "ME Advocacy Network Australia (MEANA), formerly #MEAction Network Australia, is a collaborative network of people with ME/CFS, their carers and other healthy allies, empowering each other to advocate for health equality for Australians with ME/CFS." Board of Directors: Unknown Not a Registered Charity
ME/CFS & FM Association NSW Inc. (Facebook) "The ME/CFS & FM Association NSW Inc. is a grass-roots organisation, run by volunteers for the benefit of those in NSW who are affected by ME/CFS and FM." Board Members: Alberto Macchione, Peter McKinnon, David Mcgann, Gregory Carr and Caroline Sheridan Registered Charity (updated 7/4/20)
ME/CFS & Lyme Association WA Inc. (Facebook) "The ME/CFS and Lyme Association of WA (formerly the ME/CFS Society of WA), is a registered charity in Western Australia that supports people living with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Lyme disease." (from everydayhero) Board Members: Assunta DeBono, Marleen Roch, Stephen LePage Registered Charity
ME/CFS/FM Support Association Qld Inc. "To promote awareness and understanding of the disabling nature and potential severity of ME/CFS/FM amongst: members of the Medical Profession and Allied Health Professionals, all Educators at Primary, Secondary and Tertiary levels, Employers, Politicians and Government Departments, and The Community in general." Board of Directors: Lynette Wilson, Rhonda McInnes, Theresa Clark Registered Charity
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