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The Challenge Doctors have limited time to devote to diagnosis and treatment. For complex diseases, like ME, doctors are at a disadvantage. ME, if mentioned at all, is not adequately covered in medical school or in continuing medical education. The latest research that helps experts and patients better understand ME does not reach the average doctor. This lack of proper information leads to many doctors using outdated information that includes harmful and or ineffective treatments including graded exercise therapy and cognitive behavior therapy. The Situation In 2012 expert clinicians put together the ME ICP to guide doctors in diagnosis and treatment of ME. The ICP provides information to better understand the biological abnormalities seen in ME that help guide best treatment practices. Some patients find compassionate doctors willing to use the information in the ICP to better care for their ME patients. Unfortunately, most doctors are unaware of what the ICP has to offer. A Path Forward ME International’s team of volunteers came together to create a two page info sheet which introduces doctors to the value of the ICP. The goal was to create an easy to read information sheet to help doctors better care for ME patients. The result is a doctor handout titled: A MEDICAL PRACTITIONERS GUIDE FOR DIAGNOSING AND TREATING MYALGIC ENCEPHALOMYELITIS (ME) There are four (4) versions:
Feedback Appreciated Please let us know if this document helped you do any of the following:
In Addition Thank you to Dr. Nigel Speight for the powerful message to physicians in the final quote on this doctor handout.
Dr. Speight is a paediatrician from the northeast of the UK (Durham) with a longstanding special interest in paediatric ME. He is the medical/paediatric adviser to several UK charities including the ME Association, the TYMES Trust and the 25% group. He has written a case report, Severe ME in Children, which can be found on the Severe ME page on our website and Dr. Speight was a co-author of the International Consensus Criteria for ME and the Paediatric Primer.
1 Comment
Dr. James W.
3/9/2021 01:37:34 pm
You and your team have done a wonderful job with the new flyer! It seems to be well organized and cohesive containing a myriad of important points in an orderly fashion. I think it will prove to be quite helpful to physicians around the country! Great work! - Jim W., Retired Surgeon, Estes Park, CO
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