We have organized this list by the criteria used by each organization, as determined by information within their website. While some organizations may not specifically state which criteria they use, most give information on what primer to use or how to get a diagnosis. We are categorizing them by what diagnosis or primer is used. For those that aren't clear they are in the "Undetermined" category.
CCC Organizations Canadian Consensus Criteria (labeled ME/CFS) precursor to ICC.
Association quebecoise de l'encephalomyelite myalgique (AQEM) "Our mission is to make known and recognize myalgic encephalomyelitis (a disease also known as chronic fatigue syndrome), to help those affected as well as to help promote research... AQEM is a registered charity and a community organization recognized by the Quebec Ministry of Health and Social Services, which pays a subsidy each year covering part of its minimum operation costs." Board of Directors: Paul Lohnes, Christiane Garcia, Kevin Mejo, Claudine Prud'homme, Nicole Gauron, Louise Livernois, Laurence Camille, Régina Calcagno, Monica Roy, Edouard Proust, Jacques Dubé, Jean-Guy O'Connor General Coordinator:Valérie Miller Registered Charity
The ME Society of Edmonton "The M.E. Society of Edmonton is a charitable organization founded in 1991 with a vision to promote an understanding of the diseases Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Operated by a volunteer Board, the Society educates medical and legal professionals, advocates for better treatment and services for those with ME and/or CFS and supports patients, families and caregivers." Board of Directors: Lynn, Gabriel, Tracey, Oriana, Karen Not-for-profit Organization
Myalgic Encephalomyelitis Association of Ontario (MEAO) "The Myalgic Encephalomyelitis Association of Ontario (MEAO) is a volunteer-run organization that has been serving the community since 1991. We offer information and support to people living with the illnesses, as well as family members, physicians and other professionals, and the general public." Board of Directors: Keith Deviney, President Registered Charity
Action CIND Action CIND is a registered charity and non-profit organization with a vision to advance the recognition, empathy, treatment and support services for Chronic Immunological and Neurological Diseases (CIND) by raising awareness, advancing research, developing education, providing information and support services and collaborating with other organizations in Canada and internationally. Board of Directors: Alison Rae, Neil Shewan, Rutul Patel, Allan Kaufman, Vicki Sterling Board Members: Jonathan Otis, Ryan Osborne Advisors: Dr Pamela Cuddihy, Dr Riina Bray, Courtney Mulqueen, Allan Kaufman, Shega Youngson, Liz Zubek Registered Charity
May 12th International Awareness "The May12th International Awareness website and social media pages are all part of a May 12th project run by Action CIND." Founder: unknown
FM-CFS Canada "FM-CFS Canada (formerly known as Compassion in Action) is dedicated to advancing Fibromyalgia (FM) and Chronic Fatigue Syndrome (CFS) education, awareness and treatment." Board of Directors: unknown Board Members: unknown Registered Charity
The ME/FM Society of BC "Our society works to help ME and FM patients in British Columbia improve their health and quality of life by providing information about these illnesses, and guidance on how to seek and obtain support, appropriate medical help and treatments. We also focus on informing health care professionals, educators and students about ME and FM, as well as raising awareness among, and seeking the support of government and the general public." Board of Directors: Elizabeth Sanchez, Hilary Robertson, Amy Andreasen, Kati Debelic, Sue Khazaie, and Gavin Chung Not-for-profit Organization
National ME/FM Action Network "The NATIONAL ME/FM ACTION NETWORK became a Canadian charitable organization on June 18, 1993 dedicated to Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia (FM) through support, advocacy, education and research." Board of Directors: Lydia E. Neilson, Margaret Parlor, Dr. Philipa Corning, Judith Day, Sherri Todd Medical Advisors: Dr. Alison Christine Bested, Dr. Richard Bruno, Dr. Leonard Jason, Dr. Eleanor Stein, Dr. Ellen N. Thompson, Dr. Gordon D. Ko, Dr Amir Landi Registered Charity
Nightingale Research Foundation "We have been investigating M.E. patients since 1984. ... We collaborate with other medical organizations worldwide, and disseminate information to researchers, to the legal and advocate community, to healthcare professionals, and to patients and their caregivers." Board Members: Byron M. Hyde, M.D., Steve Gee, Ann Frampton, Philip DaCosta, Dr. Paul Grof, Lydia Neilson, Claire Castel (as of 10/21) Registered Charity
Waterloo Wellington Myalgic Encephalomyelitis Association (WWMEA) "The Waterloo Wellington Myalgic Encephalomyelitis Association provides support and information to persons with Myalgic Encephalomyelitis (M.E.) and their families. The WWMEA raises funds, supports research, educates government representatives, medical and educational professionals, the media and the public on Myalgic Encephalomyelitis, its debilitating effects and on the concomitant social and economic consequences." Founder/Chairman: unknown volunteers Registered Charity
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