The following are materials to help you communicate with your doctor, helping him/her understand the reality of myalgic encephalomyelitis.
Information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice.
ME INTERNATIONAL CONSENSUS CRITERIA ME-ICC
The Swiss Society for ME & CFS offers a web form to fill out the International Consensus Criteria. This questionnaire enables you to determine whether the diagnosis of ME (Myalgic Encephalomyelitis) according to the International Consensus Criteria (ICC) may be applicable to you. Upon completion of the form there will be a printout you can give to your doctor.
English German
English German
MEadvocacyOrg's ICC questionnaire (downloadable pdfs) - This is a questionnaire you can print out to complete and then take to your doctor. NOTE: If you have post-exertional neuroimmune exhaustion but do not fulfill all the requirements to fit the ICC, you may have atypical ME. Atypical ME is treated the same as ME.
English Spanish Dutch
English Spanish Dutch
ME International’s Symptom Checklist - Fill out this two page form to help your doctor see at a glance your cluster of symptoms.
HELPING YOUR DOCTOR UNDERSTAND ME
ME International’s Dr. Handout - A blog regarding our (printable) two page info sheet which introduces doctors to the value of the International Consensus Primer. Also available in Spanish and Dutch.
ME IC Primer - This primer can be printed out and handed to your doctor. It includes understanding the causes for ME symptoms and how to diagnose ME including testing on page 11. It also has management/treatment guidance starting on page 13. Links to the ME IC Primer in multiple languages can be found HERE.
ME IC Primer - This primer can be printed out and handed to your doctor. It includes understanding the causes for ME symptoms and how to diagnose ME including testing on page 11. It also has management/treatment guidance starting on page 13. Links to the ME IC Primer in multiple languages can be found HERE.
INFO SPECIFIC TO YOU
The following have fill-in sheets that can aid your doctor to understand how ME has affected you.
MEI's USING A PULSE OXIMETER
This sheet explains the importance of tracking heart rate and oxygen levels. A chart for tracking info can be found on page 4.
North Carolina/Ohio ME & FM Support Group's CARDIOLOGIST HANDOUT
This sheet has specific information regarding cardiac issues seen in ME. A chart for tracking info can be found on pages 3 and 4.
MEI's USING A PULSE OXIMETER
This sheet explains the importance of tracking heart rate and oxygen levels. A chart for tracking info can be found on page 4.
North Carolina/Ohio ME & FM Support Group's CARDIOLOGIST HANDOUT
This sheet has specific information regarding cardiac issues seen in ME. A chart for tracking info can be found on pages 3 and 4.
SPECIALISTS YOUR DOCTOR MIGHT UTILIZE
A list of ME specialists can be found in the list of those who helped write the ME IC Primer. See inside of front and back cover.
Dysautonomia specialists - See info at Dysautonomia International
Dysautonomia specialists - See info at Dysautonomia International
OTHER INFO FOR YOUR DOCTOR
MEI's INFO SHEETS WEBPAGE
Includes the following:
Basics for treating ME
Info Sheet for treating patients with ME
Avoiding an ME crash
Handout for Neurologists (specific info about ME)
ME Immunology info sheet
Diseases to rule out
Emergency room info sheet
BOOKS
Textbook by Dr. Byron Hyde (focus on enterovirus) - Understanding ME
Missed Diagnosis by Dr. Byron Hyde
Severe ME - Info & books at Stonebird
Includes the following:
Basics for treating ME
Info Sheet for treating patients with ME
Avoiding an ME crash
Handout for Neurologists (specific info about ME)
ME Immunology info sheet
Diseases to rule out
Emergency room info sheet
BOOKS
Textbook by Dr. Byron Hyde (focus on enterovirus) - Understanding ME
Missed Diagnosis by Dr. Byron Hyde
Severe ME - Info & books at Stonebird
