GETTING AN ME DIAGNOSIS USING THE ICC The ME-ICC questionnaire fromwww.MEadvocacy.org/resources is a useful tool to understand if ME is a reasonable diagnosis to consider. Circling the symptoms and presenting this to your doctor (and family/friends) can help simplify the challenge of explaining the breadth/depth of ME. EnglishSpanishDutch
The next step is to confirm the ME diagnosis. The IC Primer guides doctors to diagnose, treat and rule out other diseases. The ICC alone is not enough to confirm an ME diagnosis.
ME (G93.3 as of 5/24/20) and CFS (R53.82 as of 5/24/20) are two separate ICD diagnosis codes. Combining two different patient groups under one label (ME/CFS) leads to inadequate treatments for #pwME. These need to be kept separate.
HERE's a good (PDF) explanation fromSuzy Chapman, Dx Revision Watch about the ICD coding of PVFS, ME and CFS as of November 2019. (6/19/20)
Chronic Fatigue Syndrome (CFS) and Other Criteria
Due to decades of misinformation about diagnosing ME, we suggest everyone diagnosed with ME, CFS, ME/CFS-CCC, or systemic exertion intolerance disease (SEID) (and similar diseases) research which criteria most closely matches their experience.
ME/CFS-SEID: Systemic Exertion Intolerance Disease - Beyond ME/CFS IOM Report - 2015 Link
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