European Union
Austria, Belgium, Bulgaria, Croatia, Republic of Cyprus, Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Ireland, Italy, Latvia, Lithuania, Luxembourg, Malta, Netherlands, Poland, Portugal, Romania, Slovakia, Slovenia, Spain and Sweden. (Those in RED have their own page.)
We have organized this list by the criteria used by each organization, as determined by information within their website.
While some organizations may not specifically state which criteria they use, most give information on what primer to use or how to get a diagnosis. We are categorizing them by what diagnosis or primer is used.
For those that aren't clear they are in the "Undetermined" category.
While some organizations may not specifically state which criteria they use, most give information on what primer to use or how to get a diagnosis. We are categorizing them by what diagnosis or primer is used.
For those that aren't clear they are in the "Undetermined" category.
CCC Organizations
Undetermined Criteria
ME/CVS Stichting Nederland -- ME/CFS Foundation Netherlands
"De ME/CVS Stichting Nederland richt zich hiervoor op mensen met ME/CVS, hun omgeving, zorgprofessionals en beleidsbepalers. Met toewijding, onafhankelijkheid, integriteit en een open houding werken wij voortdurend aan het bereiken van onze doelen."
"The ME/CFS Foundation Netherlands focuses on people with ME/CFS, their environment, healthcare professionals and policymakers. We continuously work towards achieving our goals with dedication, independence, integrity and an open attitude."
Board Members: Theo Kuiphof, Jaap Jan Pieterman, Pieter Miedema, and Ronnie Schuurbiers
Netherlands
"De ME/CVS Stichting Nederland richt zich hiervoor op mensen met ME/CVS, hun omgeving, zorgprofessionals en beleidsbepalers. Met toewijding, onafhankelijkheid, integriteit en een open houding werken wij voortdurend aan het bereiken van onze doelen."
"The ME/CFS Foundation Netherlands focuses on people with ME/CFS, their environment, healthcare professionals and policymakers. We continuously work towards achieving our goals with dedication, independence, integrity and an open attitude."
Board Members: Theo Kuiphof, Jaap Jan Pieterman, Pieter Miedema, and Ronnie Schuurbiers
Netherlands
ME/CFS-SEID Organizations
European ME Coalition
"We are a group of individuals with a special interest in the disease Myalgic Encephalomyelitis (ME) also known under the ill-suited name Chronic Fatigue Syndrome (CFS). ...working on an open letter signed by esteemed scientists and researchers worldwide that addresses the underfunding of ME/CFS research in Europe. While national governments in Canada, Australia and the United States have earmarked funding for ME/CFS research, the EU is funding little to no biomedical research into this condition. This has to change." See petition HERE.
Team Members: Francis Martin, Evelien Van Den Brink, Alice, Michiel, Joachim, Giada and Dorothée
Not an Official Charity
"We are a group of individuals with a special interest in the disease Myalgic Encephalomyelitis (ME) also known under the ill-suited name Chronic Fatigue Syndrome (CFS). ...working on an open letter signed by esteemed scientists and researchers worldwide that addresses the underfunding of ME/CFS research in Europe. While national governments in Canada, Australia and the United States have earmarked funding for ME/CFS research, the EU is funding little to no biomedical research into this condition. This has to change." See petition HERE.
Team Members: Francis Martin, Evelien Van Den Brink, Alice, Michiel, Joachim, Giada and Dorothée
Not an Official Charity
The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice.
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