European Union
Austria, Belgium, Bulgaria, Croatia, Republic of Cyprus, Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Ireland, Italy, Latvia, Lithuania, Luxembourg, Malta, Netherlands, Poland, Portugal, Romania, Slovakia, Slovenia, Spain and Sweden. (Those in RED have their own page.)
We have organized this list by the criteria used by each organization, as determined by information within their website.
While some organizations may not specifically state which criteria they use, most give information on what primer to use or how to get a diagnosis. We are categorizing them by what diagnosis or primer is used.
For those that aren't clear they are in the "Undetermined" category.
While some organizations may not specifically state which criteria they use, most give information on what primer to use or how to get a diagnosis. We are categorizing them by what diagnosis or primer is used.
For those that aren't clear they are in the "Undetermined" category.
ICC Organizations
M.E. Centraal
"ME Central is een platform voor uitwisseling en delen. Ontworpen voor en door mensen die meer duidelijkheid en duidelijke communicatie willen over de ziekte ME en de ernst ervan." Hier verschijnen steeds meer artikelen in het Engels. Vanaf januari 2021 is dit de opslagplaats voor de ME Global Chronicle."
"ME Central is a platform for exchange and sharing. Designed for and by people who want more clarity and clear communication about the disease ME and its severity." More and more articles in English are being published here. As of January 2021, this will be the repository for the ME Global Chronicle.
Founder: Rob Wijbenga
Netherlands
"ME Central is een platform voor uitwisseling en delen. Ontworpen voor en door mensen die meer duidelijkheid en duidelijke communicatie willen over de ziekte ME en de ernst ervan." Hier verschijnen steeds meer artikelen in het Engels. Vanaf januari 2021 is dit de opslagplaats voor de ME Global Chronicle."
"ME Central is a platform for exchange and sharing. Designed for and by people who want more clarity and clear communication about the disease ME and its severity." More and more articles in English are being published here. As of January 2021, this will be the repository for the ME Global Chronicle.
Founder: Rob Wijbenga
Netherlands
Steungroep ME en Arbeidsongeschiktheid -- ME & Disability Support Group
"De Steungroep ME en Arbgeidsongeschiktheid bestaat sinds november 1994, vanaf april 1995 als stichting. De Steungroep bestaat grotendeels uit vrijwilligers die zelf met ME of CVS te maken hebben, als patiënt of als naaste van een patiënt. De activiteiten van de Steugroep worden gefinancierd uit bijdragen van vaste donateurs, verkoop van informatiemateriaal en schenkingen."
"The ME and Occupational Disability Support Group has existed since November 1994, from April 1995 as a foundation. The Support Group consists largely of volunteers who deal with ME or CFS themselves, as a patient or as a close relative of a patient. The activities of the Support Group are financed by contributions from regular donors, sales of information material and donations."
Board Members: Catrinus Egas, Karin Brandt, Cobi de Kort, Weird de Bruin, and Ynske Jansen (co-founder/advisor).
Netherlands
"De Steungroep ME en Arbgeidsongeschiktheid bestaat sinds november 1994, vanaf april 1995 als stichting. De Steungroep bestaat grotendeels uit vrijwilligers die zelf met ME of CVS te maken hebben, als patiënt of als naaste van een patiënt. De activiteiten van de Steugroep worden gefinancierd uit bijdragen van vaste donateurs, verkoop van informatiemateriaal en schenkingen."
"The ME and Occupational Disability Support Group has existed since November 1994, from April 1995 as a foundation. The Support Group consists largely of volunteers who deal with ME or CFS themselves, as a patient or as a close relative of a patient. The activities of the Support Group are financed by contributions from regular donors, sales of information material and donations."
Board Members: Catrinus Egas, Karin Brandt, Cobi de Kort, Weird de Bruin, and Ynske Jansen (co-founder/advisor).
Netherlands
To find additional ICC orgs, see our International page.
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The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice.
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