We have organized this list by the criteria used by each organization, as determined by information within their website. While some organizations may not specifically state which criteria they use, most give information on what primer to use or how to get a diagnosis. We are categorizing them by what diagnosis or primer is used. For those that aren't clear they are in the "Undetermined" category.
CCC Organizations Canadian Consensus Criteria (labeled ME/CFS) precursor to ICC.
Association quebecoise de l'encephalomyelite myalgique (AQEM) "Our mission is to make known and recognize myalgic encephalomyelitis (a disease also known as chronic fatigue syndrome), to help those affected as well as to help promote research... AQEM is a registered charity and a community organization recognized by the Quebec Ministry of Health and Social Services, which pays a subsidy each year covering part of its minimum operation costs." Board of Directors: Paul Lohnes, Christiane Garcia, Kevin Mejo, Claudine Prud'homme, Nicole Gauron, Louise Livernois, Laurence Camille, Régina Calcagno, Monica Roy, Edouard Proust, Jacques Dubé, Jean-Guy O'Connor General Coordinator:Valérie Miller Registered Charity
Action CIND Action CIND is a registered charity and non-profit organization with a vision to advance the recognition, empathy, treatment and support services for Chronic Immunological and Neurological Diseases (CIND) by raising awareness, advancing research, developing education, providing information and support services and collaborating with other organizations in Canada and internationally. Board of Directors: Alison Rae, Neil Shewan, Rutul Patel, Allan Kaufman, Vicki Sterling Board Members: Jonathan Otis, Ryan Osborne Advisors: Dr Pamela Cuddihy, Dr Riina Bray, Courtney Mulqueen, Allan Kaufman, Shega Youngson, Liz Zubek Registered Charity
May 12th International Awareness "The May12th International Awareness website and social media pages are all part of a May 12th project run by Action CIND." Founder: unknown
FM-CFS Canada "FM-CFS Canada (formerly known as Compassion in Action) is dedicated to advancing Fibromyalgia (FM) and Chronic Fatigue Syndrome (CFS) education, awareness and treatment." Board of Directors: unknown Board Members: unknown Registered Charity
The ME/FM Society of BC Action xxxxxxxxxxxxxxxxxationally. Board of Directors: unknown Board Members: unknown Registered Nonprofit Charity
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