The Australian New Zealand Clinical Trials Registry (ANZCTR) is an online register of clinical trials being undertaken in Australia, New Zealand and elsewhere. The ANZCTR includes trials from the full spectrum of therapeutic areas of pharmaceuticals, surgical procedures, preventive measures, lifestyle, devices, treatment and rehabilitation strategies and complementary therapies.
R.E.D. Laboratories is a private Belgian company, focused on developing and performing specialty research and diagnostic tests for chronic immune disorders, intestinal dysfunctions, tick-borne diseases (Lyme disease) and multifactorial disorders like autism and CFS. They also have a Lab in the USA.
Dialogues for a neglected illness or Dialogues for ME/CFS is a new project being made with an award from the Wellcome Public Engagement Fund. More information here. The project will consist of a website with a collection of about a dozen new short videos, accompanied by links to existing educational and reference material. It will create a vivid, multi-faceted picture of ME/CFS, covering different aspects of the disease from a variety of perspectives, which will include – diagnosis; various management and treatment issues; severe ME and the support doctors can provide; key symptoms described by patients in their own words – short and long term experiences and of differing severities; patient advocates’ concerns; and the broader historical, social, medical and cultural context for the disease. It will involve interviews and input from doctors, biomedical and psychological researchers, patients, carers and advocates. It will create a resource which patients can use to help their doctors and other health, education and research professionals understand more about this disease and the issues faced. As well as existing on the ‘Dialogues for ME/CFS’ project website (which is yet to be constructed), the project, or sections of it, will be available on the Cure-ME (LSHTM), ME Research UK, Workwell Foundation and Hope 4 Fibro & ME websites, where it will be more easily discovered online. This is a temporary home for pages from the project, which is a work in progress.
The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice. ME International is a 501(c)(3) nonprofit and is listed as a nonprofit corporation with the state of Colorado.
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