The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice.
MYALGIC ENCEPHALOMYELITIS (ME) is not a diagnosis to be given lightly. ME patients suffer a living death that is life changing and, in most cases, lifelong. These patients will need to avoid many activities a normal person would undertake.
Due to the severe nature of the disease they will have to reduce or avoid interaction that is overstimulating which may include interaction with people. The progression of the disease is not well understood but a significant percentage may become so ill as to require a caregiver to meet daily needs and a subgroup may require 24/7 care and tube feeding.
FIRST - DO NO HARM - or in the case of ME patients Do as little harm as possible while trying to help the patients improve quality of life.
Coping With Symptoms While Waiting For a Cure Suggestions for coping listed by symptom. Information compiled from input from many group members. Feedback and more suggestions are always welcome. This is an ongoing work in progress.
ME Cardiologist Handout ME is linked to insufficient heart function. ME affects many systems including impaired immunity, neurological abnormalities, broken oxygen exchange, impaired energy production, muscle fatigueabilty, dysfunctional ANS, and more. Symptoms often occur immediately after acquiring disease.
Neurologist Handout ME has been listed under neurology by the World Health Organization since 1969. This cheat sheet was created to inform patients and medical professionals on the specific neurological abnormalities found in ME.
ME Immunology Cheat Sheet ME patients suffer from immune dysfunction which can lead reactivated viruses and opportunistic infections which can be treated. This cheat sheet was created to inform patients and medical professionals on the specific immune system abnormalities found in ME.
ME Diseases to Rule Out Many conditions/diseases can be mistakenly diagnosed as ME. It is important to pursue a proper diagnosis in order to get proper treatment.
ME Emergency Room Info Sheet Information compiled from patient input and expert documents to assist patients and caregivers in communicating with medical professionals. Detailed medical information can be found in the Myalgic Encephalomyelitis: International Consensus Primer for Medical Practitioners (2012).
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The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice. ME International is a 501(c)(3) nonprofit and is listed as a nonprofit corporation with the state of Colorado.
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