The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice.
MYALGIC ENCEPHALOMYELITIS (ME) is not a diagnosis to be given lightly. ME patients suffer a living death that is life changing and, in most cases, lifelong. These patients will need to avoid many activities a normal person would undertake.
Due to the severe nature of the disease they will have to reduce or avoid interaction that is overstimulating which may include interaction with people. The progression of the disease is not well understood but a significant percentage may become so ill as to require a caregiver to meet daily needs and a subgroup may require 24/7 care and tube feeding.
FIRST - DO NO HARM - or in the case of ME patients
Do as little harm as possible while trying to help the patients improve quality of life.
#MEICPrimer
This primer was written to provide clinicians a one-stop, user-friendly reference for ME.
We understand a Spanish version is in the works. Please contact us if you are aware of other translations or are interested in translating the Primer into another language.
This primer was written to provide clinicians a one-stop, user-friendly reference for ME.
We understand a Spanish version is in the works. Please contact us if you are aware of other translations or are interested in translating the Primer into another language.
What should be included in Medical Textbooks based on expert and patient experience.
Pulse Oximeter Info Sheet
Here you can download an info sheet explaining the benefits and usage of a pulse oximeter.
Here you can download an info sheet explaining the benefits and usage of a pulse oximeter.
Info Sheet for Treating Patients with ME
Brief overview covering many areas of diagnosis and treatment.
Brief overview covering many areas of diagnosis and treatment.
Avoiding an ME CRASH –
aka Post-exertional Neuroimmune Exhaustion (PENE)
Understanding PENE with tips to help minimize ME crashes.
aka Post-exertional Neuroimmune Exhaustion (PENE)
Understanding PENE with tips to help minimize ME crashes.
ME is linked to insufficient heart function. ME affects many systems including impaired immunity, neurological abnormalities, broken oxygen exchange, impaired energy production, muscle fatigueabilty, dysfunctional ANS, and more. Symptoms often occur immediately after acquiring disease.
Neurologist Handout
ME has been listed under neurology by the World Health Organization since 1969. This cheat sheet was created to inform patients and medical professionals on the specific neurological abnormalities found in ME.
ME has been listed under neurology by the World Health Organization since 1969. This cheat sheet was created to inform patients and medical professionals on the specific neurological abnormalities found in ME.
ME Immunology Info Sheet
ME patients suffer from immune dysfunction which can lead reactivated viruses and opportunistic infections which can be treated. This cheat sheet was created to inform patients and medical professionals on the specific immune system abnormalities found in ME.
ME patients suffer from immune dysfunction which can lead reactivated viruses and opportunistic infections which can be treated. This cheat sheet was created to inform patients and medical professionals on the specific immune system abnormalities found in ME.
Coping With Symptoms While Waiting For a Cure
Information about managing many symptoms, compiled from the North Carolina/Ohio ME & FM Support Group on Facebook. Feedback and more suggestions are always welcome. Tips apply to symptoms found in many chronic conditions.
Information about managing many symptoms, compiled from the North Carolina/Ohio ME & FM Support Group on Facebook. Feedback and more suggestions are always welcome. Tips apply to symptoms found in many chronic conditions.
ME Diseases to Rule Out
Many conditions/diseases can be mistakenly diagnosed as ME.
It is important to pursue a proper diagnosis in order to get proper treatment.
Many conditions/diseases can be mistakenly diagnosed as ME.
It is important to pursue a proper diagnosis in order to get proper treatment.
ME Emergency Room Info Sheet
Information compiled from patient input and expert documents to assist patients and caregivers in
communicating with medical professionals. Detailed medical information can be found in the
Myalgic Encephalomyelitis: International Consensus Primer for Medical Practitioners (2012).
Information compiled from patient input and expert documents to assist patients and caregivers in
communicating with medical professionals. Detailed medical information can be found in the
Myalgic Encephalomyelitis: International Consensus Primer for Medical Practitioners (2012).
