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IC Primer & ME Info Sheets
(updated 17 May 2022)

Join ME International
#MEICPrimer Download
Wordcloud of terms associated with the IC Primer.

​The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice.


​MYALGIC ENCEPHALOMYELITIS (ME) is not a diagnosis to be given lightly.  ME patients suffer a living death that is life changing and, in most cases, lifelong.  These patients will need to avoid many activities a normal person would undertake. 

Due to the severe nature of the disease they will have to reduce or avoid interaction that is overstimulating which may include interaction with people.  The progression of the disease is not well understood but a significant percentage may become so ill as to require a caregiver to meet daily needs and a subgroup may require 24/7 care and tube feeding.


FIRST - DO NO HARM - or in the case of ME patients
Do as little harm as possible while trying to help the patients improve quality of life.


Myalgic Encephalomyelitis
- Adult & Paediatric
International Consensus Primer for Medical Practitioners
in English
auf Deutsch - German
in het Nederlands - Dutch
på Dansk - Danish
en Español - Coming Soon
en Français - French
på Norsk - Norwegian
#MEICPrimer
This primer was written to provide clinicians a one-stop, user-friendly reference for ME.

We understand a Spanish version is in the works.  Please contact us if you are aware of other translations or are interested in translating the Primer into another language.

Dr. Handout based on ICP

Basics for Treating ME
in English
en Español
What should be included in Medical Textbooks based on expert and patient experience.

Pulse Oximeter Info Sheet
in English
en Español

Here you can download an info sheet explaining the benefits and usage of a pulse oximeter.


Info Sheet for Treating Patients with ME
Brief overview covering many areas of diagnosis and treatment.

Avoiding an ME CRASH –
aka Post-exertional Neuroimmune Exhaustion (PENE)
 

Understanding PENE with tips to help minimize ME crashes.

ME Cardiologist Handout
in English
en Español
ME is linked to insufficient heart function.  ME affects many systems including impaired immunity, neurological abnormalities, broken oxygen exchange, impaired energy production, muscle fatigueabilty, dysfunctional ANS, and more.  Symptoms often occur immediately after acquiring disease.

Neurologist Handout
ME has been listed under neurology by the World Health Organization since 1969.  This cheat sheet was created to inform patients and medical professionals on the specific neurological abnormalities found in ME.

ME Immunology Info Sheet
ME patients suffer from immune dysfunction which can lead reactivated viruses and opportunistic infections which can be treated.  This cheat sheet was created to inform patients and medical professionals on the specific immune system abnormalities found in ME.

LDN Use in ME (pdf)
in English
en Español
This Low Dose Naltrexone info sheet offers info about the use of LDN to treat some ME symptoms.​

​Coping With Symptoms While Waiting For a Cure
Information about managing many symptoms, compiled from the North Carolina/Ohio ME & FM Support Group on Facebook.  Feedback and more suggestions are always welcome.  Tips apply to symptoms found in many chronic conditions.​

Conditions to Rule Out
Updated 01 May 2022
​Many conditions/diseases can be mistakenly diagnosed as ME.
It is important to pursue a proper diagnosis in order to get proper treatment.

ME Emergency Room Info Sheet
Information compiled from patient input and expert documents to assist patients and caregivers in
communicating with medical professionals.  Detailed medical information can be found in the
Myalgic Encephalomyelitis: International Consensus Primer for Medical Practitioners (2012).

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Crisis Information
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​The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice.
ME International is a 501(c)(3) nonprofit and is listed as a nonprofit corporation with the state of Colorado.

Copyright 2019-2022 ME International. All rights reserved.
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  • Home
    • Current Newsletter
    • Members in the News
    • Archived Newsletters
    • Advocacy
    • Board of Directors >
      • Annual Report 2021
      • Annual Report 2020
  • Criteria
    • Understanding Criteria
    • Severe ME
    • FAQs about ME
    • The History of ME
  • Medical/Research
    • Primer/Info Sheets
    • Patient Resources >
      • Communicate w/Doctor
      • ER Info for pwME
      • Assistance
      • Do I Have ME?
      • Pain
      • PENE
      • Sleep Problems
      • Disability
      • Coping with Symptoms while waiting for a Cure
      • Medical Specialties
    • Exercise Dangers
    • Published ME-ICC Studies >
      • Published ME-CCC Studies
    • Possible Biomarkers
    • Videos / Music
  • Orgs
    • Crisis Information
    • International ME-ICC Orgs
    • Australian ME-ICC Orgs
    • Canadian ME-ICC Orgs
    • E.U. ME-ICC Orgs
    • German ME-ICC Orgs
    • Irish ME-ICC Orgs
    • Japanese ME-ICC Orgs
    • New Zealand ME-ICC Orgs
    • Norwegian ME-ICC Orgs
    • Portuguese ME-ICC Orgs
    • South African ME-ICC Orgs
    • Spanish ME-ICC Orgs
    • Swiss ME-ICC Orgs
    • UK ME-ICC Orgs
    • US ME-ICC Orgs
  • Connect
    • Membership Application
    • FB Groups
    • Committees
    • Contact
  • Blog List
    • Outside Blogs on ME
  • Donate
    • Pulse Oximeter Fundraiser