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U.S. ME-ICC
Organizations

(updated 24 March 2022)

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United States


ME International lists all ME and ME/CFS organizations regardless of any diagnostic criteria that they might promote because people may want to learn about ME or CFS organizations around the world. 
ME International, however, wants to clarify that ME International specifically supports the ICC diagnostic criteria.  ME International feels the fastest way for ME patients to get proper care is by adopting the ICC.
See button below for other criteria organizations.
Picture

ICC Organizations

ME-International
To support ME organizations, educate the general public, medical providers, and governments throughout the world as well as support ME patients, caregivers, advocates, family and friends.
Board of Directors:  James Lutey, David Steckel, Mary Kelley, Heather Seckinger
Board Members:  Pam Lutey, Colleen Steckel, Janet Flynt and Suzy Paulsen

501(c)(3) nonprofit

MEadvocacy.org
Recognition, Definition, & Research for Myalgic Encephalomyelitis (ME) ICC.
Advisory Committee: 
Joni Comstock, Colleen Steckel, Tracey Ann-Tempel Smith, Gabby Klein
Project of May12.org - 501(c)(3) nonprofit

May12.org
Raise global awareness and education for complex immunological and neurological diseases (CIND) including ME.
Board Members: 
Joni Comstock, Tracey Ann-Tempel Smith, RJ James, Lea Wolven
501(c)(3) nonprofit

National Alliance for ME (NAME-US) (archived)
Established to address the issues of recognition and definition, and to raise awareness of this devastating neuroimmune disease.
Co-Founders: 
Steven Du Pre and Lois Ventura

To find additional ICC orgs, see our International page.
Other Criteria Organizations


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​The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice.
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  • Home
    • Current Newsletter
    • Members in the News
    • Archived Newsletters
    • Advocacy
    • Board of Directors >
      • Annual Report 2021
      • Annual Report 2020
  • Criteria
    • Understanding Criteria
    • Severe ME
    • FAQs about ME
    • The History of ME
  • Medical/Research
    • Primer/Info Sheets
    • Patient Resources >
      • Communicate w/Doctor
      • ER Info for pwME
      • Assistance
      • Do I Have ME?
      • Pain
      • PENE
      • Sleep Problems
      • Disability
      • Coping with Symptoms while waiting for a Cure
      • Medical Specialties
    • Exercise Dangers
    • Published ME-ICC Studies >
      • Published ME-CCC Studies
    • Possible Biomarkers
    • Videos / Music
  • Orgs
    • Crisis Information
    • International ME-ICC Orgs
    • Australian ME-ICC Orgs
    • Canadian ME-ICC Orgs
    • E.U. ME-ICC Orgs
    • German ME-ICC Orgs
    • Irish ME-ICC Orgs
    • Japanese ME-ICC Orgs
    • New Zealand ME-ICC Orgs
    • Norwegian ME-ICC Orgs
    • Portuguese ME-ICC Orgs
    • South African ME-ICC Orgs
    • Spanish ME-ICC Orgs
    • Swiss ME-ICC Orgs
    • UK ME-ICC Orgs
    • US ME-ICC Orgs
  • Connect
    • Membership Application
    • FB Groups
    • Committees
    • Contact
  • Blog List
    • Outside Blogs on ME
  • Donate
    • Pulse Oximeter Fundraiser