United States


ME International lists all ME and ME/CFS organizations regardless of any diagnostic criteria that they might promote because people may want to learn about ME or CFS organizations around the world. 
ME International, however, wants to clarify that ME International specifically supports the ICC diagnostic criteria.  ME International feels the fastest way for ME patients to get proper care is by adopting the ICC.
See button below for other criteria organizations.

ICC Organizations

ME-International
To support ME organizations, educate the general public, medical providers, and governments throughout the world as well as support ME patients, caregivers, advocates, family and friends.
Board of Directors:  James Lutey, David Steckel, Mary Kelley, Heather Seckinger
Board Members:  Pam Lutey, Colleen Steckel, Janet Flynt and Suzy Paulsen
501(c)(3) nonprofit

MEadvocacy.org
Recognition, Definition, & Research for Myalgic Encephalomyelitis (ME) ICC.
Advisory Committee:  Joni Comstock, Colleen Steckel, Tracey Ann-Tempel Smith, Gabby Klein
Project of May12.org - 501(c)(3) nonprofit

May12.org
Raise global awareness and education for complex immunological and neurological diseases (CIND) including ME.
Board Members:  Joni Comstock, Tracey Ann-Tempel Smith, RJ James, Lea Wolven
501(c)(3) nonprofit

National Alliance for ME (NAME-US) (archived)
Established to address the issues of recognition and definition, and to raise awareness of this devastating neuroimmune disease.
Co-Founders:  Steven Du Pre and Lois Ventura

To find additional ICC orgs, see our International page.


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