ME International lists all ME and ME/CFS organizations regardless of any diagnostic criteria that they might promote because people may want to learn about ME or CFS organizations around the world. ME International, however, wants to clarify that ME International specifically supports the ICC diagnostic criteria. ME International feels the fastest way for ME patients to get proper care is by adopting the ICC. See button below for other criteria organizations.
ICC Organizations
ME-International To support ME organizations, educate the general public, medical providers, and governments throughout the world as well as support ME patients, caregivers, advocates, family and friends. Board of Directors: James Lutey, David Steckel, Mary Kelley, Heather Seckinger Board Members: Pam Lutey, Colleen Steckel, Janet Flynt and Suzy Paulsen 501(c)(3) nonprofit
MEadvocacy.org Recognition, Definition, & Research for Myalgic Encephalomyelitis (ME) ICC. Advisory Committee: Joni Comstock, Colleen Steckel, Tracey Ann-Tempel Smith, Gabby Klein Project of May12.org - 501(c)(3) nonprofit
May12.org Raise global awareness and education for complex immunological and neurological diseases (CIND) including ME. Board Members: Joni Comstock, Tracey Ann-Tempel Smith, RJ James, Lea Wolven 501(c)(3) nonprofit
National Alliance for ME (NAME-US) (archived) Established to address the issues of recognition and definition, and to raise awareness of this devastating neuroimmune disease. Co-Founders: Steven Du Pre and Lois Ventura